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What to Do After an Autism Diagnosis for Your Child | The Essential Guide To Autism

What to Do After an Autism Diagnosis for Your Child

If you’re child has received an autism diagnosis, you may feel like all of the hopes and dreams you had for your child’s future have ended.  These feelings of guilt, grief and fear are normal for parents when they first discover their child is autistic.  However, you need to know that you’re not alone and there is help out there for both you and your child.

To help you cope with the autism diagnosis, the following are 10 guidelines for you to take into consideration:

1. Don’t Panic – Feeling overwhelmed is natural at first, but this drowning feeling will pass.  You need to remember autism - although a challenging condition - is not a life threatening illness.  Take the time to calm down and rationally think things through.

2. Your child is still the same – An autism diagnosis doesn’t mean your child is any different than he was prior to your knowledge of his condition.  A diagnosis has only provided you with the chance to better understand your child, so you can provide him with the support that will allow him to have the best life.  The love you have for your child and all the good you see in him or her will remain their forever.  No diagnosis can change that.

3. Educate yourself – Find out everything there is to know about autism.  You can find information in books and articles in your local library, bookstore and online.  The internet is a fantastic resource for autism. 

4. Ask questions – don’t forget to address any questions or concerns you may have with your doctor.

5. Find out what your child needs – Depending on the type of autism diagnosis your child receives she may have many or few special needs.  Carefully analyze your child’s behaviors and discuss them with your doctor to determine the best course of action for treating the issue.  For instance, does your child have sensory problems?  Speech delays? Social deficits? Etc.

6. Find out what is available – Just because you discover what your child needs, doesn’t mean you’ll have immediate access to the therapies required, or even know how to work them into your lifestyle if they are available. You also need to find out if your medical insurance will cover any of the therapies your child will need.  Once you have everything sorted out, you can begin to set up a program that can meet your needs.

7. Stick to basic therapies – When you research therapies, you will discover that there are numerous treatments.  Instead of becoming overwhelmed, focus on the basic therapies that are readily available, appropriate to your child, and funded.  The basics usually include speech therapy, physical therapy, and occupational therapy.  There may also be therapies offered within schools.

8. Introduce treatment slowly – Remember, most therapies are a slow process that take weeks or even months until you begin to see a difference in your child.  Therefore, try not to introduce too many therapies after the autism diagnosis.  When you take it slow you are able to observe how your child responds to each, and determine what is successful and what isn’t.

9. Relax – The wellbeing of your child is important, but so is yours and the rest of your family.  It’s imperative that you find ways to relieve your stress, take breaks, and enjoy your own life.   You will be able to better care for your autistic child when you are well rested.

10. You’re not alone – There are many autism support groups you can join both locally and online after receiving an autism diagnosis.  Talking to other parents with autistic children, and hearing and sharing your experiences can be very helpful and therapeutic to you and your child.

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One Response

  1. February 5th, 2007 | 7:07 am

    So what do you do after you have done all of this? We had our son tested, and the school did not accept the diagnois and recommendations from the place we got the testing done. The school did their own testing, and they concluded that he does not have Aspergers, so now we cannot get any assistance through the school. We got a one on one personal skills trainer for our son, and the skills that he was suppose to be working on either did not improve or in some cases got worse. Nothing we have done for our son since his diagnosis has helped him, or us as a family, so what do we do now?